dyslexia – Live Now and Zen

All Dressed Up With Some Place To Go

by MeApril 24, 2022Leave a comment

With our senior set to graduate in 39 days, 17 hours, and 30 minutes (not that I’m counting), last night we attended our final Denver Academy Gala as parents of a current student. Because the last two gala events had to be held virtually, we were thrilled to learn this year’s event would be in person again, and at The Ritz-Carlton, nonetheless. I’ve missed this event because it is my yearly excuse to get dressed up and prove that I know which fork to use at a full place setting. I get to wear a lovely dress and heels and see my husband looking dapper in his suit. And raising funds so more students can attend this private school that teaches students with learning disabilities the way they learn best is a passion project now. Steve and I will likely continue to attend these events after Luke graduates because the school changed our sons’ educational trajectories so dramatically. Luke entered 7th grade at the school reading more than a year below grade level, but four years later at 17 he was reading at post graduate level. Joe, who struggled in nearly every subject in elementary school, now attends a competitive liberal arts college and has a 3.6 grade point average. You can’t argue with that success. This year the school celebrates fifty years changing lives for these neurodiverse kids. We were happy to dress up, show up, and donate from the deepest corner of our pockets.

It’s not hyperbole when I say Denver Academy saved our family. Once our sons started at this school, there were no more homework battles; in fact, we were rarely asked to help with homework at all. Parent/teacher conferences no longer made me cry. The boys started believing they were capable. Smart, even. This was new territory for them. They began getting involved in sports and clubs. For our part, we attended a seminar that simulated what it’s like to live with learning disabilities and gained a better understanding of our sons’ struggles. We showed up for every lecture and presentation DA held that we felt could help us do better for our kids. We bonded with other parents whose experiences with their children were eerily similar to ours. We no longer felt isolated in our situation with our children. We found a home, and nothing in our lives has been the same since.

Thank you, Denver Academy, for teaching our kids how to be successful in their skin and for teaching us that learning differences are something to appreciate, not fear.

The Lost Boys And Girls

by MeFebruary 15, 20222 Comments

I have over the years written here about our sons and their struggles and triumphs with education. Joe was diagnosed with ADHD at 8, and then we discovered he also had some dyslexia-adjacent issues with math (dyscalculia) and writing (dysgraphia). When our youngest was 9, we learned he had severe dyslexia and needed immediate, intensive tutoring or placement at a specialized school to remediate these issues. It was hard to take in all this information as a parent. It was harder still to recognize and accept that our sons were atypical. They struggled to thrive in a traditional school setting. Whether we liked it or were comfortable with it or not, our sons needed something else.

To that end, we placed them in a special school for kids with learning disabilities. They started when they were in 4th and 6th grades, respectively, and they improved so much in this new paradigm that we moved them to a high school that allowed them to continue along this same pathway. Our recognizing and accepting our children as they were and where they were changed their trajectory entirely. We knew they needed help. We also knew we had no clue how to help them. So we found people who could.

Now, we were in the fortunate position to be able to afford a specialized education for them, and I recognize not everyone has the means we had to make a difference for them. Before we had them in private school, we used our insurance plan to get them occupational and speech therapy. After that, we tried private tutoring, but the overwhelm for them of trying to keep up in traditional school plus spend hours a week with a tutor was untenable. They were exhausted and frustrated with being “different.” So we looked for schools that would use school time for the catch-up help they needed. And, again, we were in the fortunate position to find not one, but two, such schools in our metropolitan area. These schools, with their student bodies comprised entirely of kids just like our boys, helped them see their own potential and proved to them that they weren’t anomalies. This made them feel capable and it taught them how they learned and how they could advocate for themselves to get what they needed in other settings as well.

I have been thinking a lot lately about how parents of younger children handled working at home and having their kids do school from home during the pandemic. I believe a lot of families have spent the past two years struggling with their children as they tried to learn and complete work at home rather than in the school settings they were accustomed to. I found a pers pective piece in the Washington Post that seems to suggest as much. I assume some parents, when witnessing firsthand their students learning at home, may have realized for the first time that their child or children have difficulties learning that they were unaware of. While it is hard to determine the exact number of atypical learners because not everyone who struggles has been properly diagnosed, the statistics run somewhere between 10-20% of all individuals. Not every child is cut out for traditional education. Some need something different or, at the minimum, some extra attention. And not every child will go on to higher education. Some children will excel at trade schools or art schools or in local, associates degree programs. There are many paths through this life, but every child should be getting the help they need to get through their formative educational years. No child should be struggling because they have brain differences that make learning in the traditional paradigm less than optimal.

Our schools are struggling. I read just today that an estimated half of teachers are looking for an off-ramp from their teaching careers. Not only do we need to attract more people to the teaching profession and increase pay to retain the quality teachers we have today, we also need to bring in professionals to help the kids who are getting lost, be it due to learning disabilities, poverty issues, or social issues. We are failing our children. Every day I am grateful our sons were to be born into a family where they were able to get all the extra help they needed to grow, thrive, and move forward with their dreams. I wish other children had the same access to the type of schooling our sons received. We have so many issues in our country right now, but the children who have lost time in their education due to Covid, who might also be battling other issues outside their control, will still need to launch into their futures someday. I hope we find solutions for them or this latest generation might come to be known as the lost generation.

Name Your Son After Luke Skywalker And You Just Might Get Someone With Jedi Power

by MeDecember 14, 2021December 15, 20212 Comments

And so it begins. Luke received his first college acceptance. Today, the University of Denver sent him an acceptance letter stating that he is recognized as a Chancellor’s Scholar. So, I’m going to take a moment to shine a light on my son, not because I want to brag (although I kind of do) but because I’ve never met anyone like him.

Luke has always been a hard worker and a helper. Despite having been diagnosed with severe dyslexia in third grade, he has found ways to rise above. He started fourth grade at a first grade reading level. Reading was hard for him, but he worked at it. A lot. Instead of shying away from reading, he made it his job to overcome his dyslexia. He did such a good job that the only way you can tell now that he is dyslexic is his reading speed. He is a slow reader, but he is exceptionally good at it now. At the end of his junior year, when his IQ and skills were last tested, Luke was reading at graduate school level. Luke went from barely being able to read Magic Tree House books with help in third grade to reading The Iliad and The Odyssey the summer before his freshman year. Luke never quits.

He is organized, focused, and structured in his approach to everything. He needs 25 solo volunteer hours to graduate in June. He is already beyond those hours. He has a project due for Western Civ this Thursday. He created 26 slides for it and finished it this afternoon. There is no such thing as minimal effort from him. He does nothing half-assed. In eighth grade, he became an ambassador for his school, giving tours to prospective students and their parents. He became a lead ambassador his sophomore year. He’s the president of his school’s National Honor Society chapter and has served on the Student Senate as an officer as well. He ran both track and cross-country. Luke submitted five college applications. The first three were due November 1st. He had those completed three weeks in advance. He went ahead and submitted the two that weren’t due until January 15th at the same time.

But, Luke’s effort doesn’t simply apply to school. He is like this all the time. When he makes his mind up to do something, he goes for it. He decided a while back that he wanted to be a better singer. So, he took voice lessons for a year. He was struggling with anxiety (pursuant to his work ethic and built-in need to excel) and started therapy to work on it. Despite not being thrilled at first with having to admit he needed some assistance, he grew to appreciate therapy and has been going regularly for years. He has so valued the experience that he is currently considering earning a PsyD (Doctor of Psychology) degree so he provide therapy to others. He contributes at home without complaint. And at the end of his day, he says good night to us and heads to his room to do some free reading, spending upwards of an hour on that each night to unwind.

I have to admit the most fun part of all of this for me is seeing Luke’s hard work pay off. Two years of middle school and four years of high school with honors classes and straight A grades and tonight, for the first time, he seemed satisfied with his efforts.

Luke has taught me so much. He has always been unstoppable. He has self-confidence to spare, but it’s his work ethic that makes him who he is. Luke has taught me there’s no point in underestimating yourself, and the only thing that can hold you back is you. For this reason, Luke is limitless. He will reach his goals, even if he has to use a machete to cut his own path to get there. I have no doubts or concerns about his ability to do anything he sets his mind to.

We had Luke Skywalker in mind when we named our Luke. It was a good way to go. As it turns out, our Luke, like his namesake, wields a lot of power. Unlike Luke Skywalker, though, our Luke didn’t need Yoda to tell him, “Do or do not. There is no try.” “Try” is not a word in this kid’s vocabulary. He’s got Jedi power.

A Missing Letter Can Change Everything

by MeNovember 10, 2021Leave a comment

All consonants are important, even if they’re voiceless.

Tonight Thing One sent me a paper to edit. He does this on occasion. One of the only benefits of having a mom who writes is that she might be willing to do some editing for you in a pinch. The paper tonight was for his history class and covered the Reformation. As I was reading through it and checking the grammar and spelling, I noticed that my darling son’s dyslexia reared its head. He had “peasant” written as “pheasant.” This took me back to a post I wrote almost 10 years ago when I was proofreading a 4th grade book report for him.

Joe had written a book report on Danny, Champion of the World by Roald Dahl. As I was reading his paper, I was having a hard time understanding what he was saying because he kept referring to the main characters “poaching peasants.” The story involves a father and son who put sleeping pills in raisins and use them to poach pheasants off a neighbor’s land. But in the book report, Joe kept referring to the pheasants as “peasants.” Imagine my consternation when I’m reading along and thinking my 4th grade son is reading a book about a father and son who kill people and eat them.

I know that at 20 Joe knows the difference between a peasant and a pheasant. He actually knew the difference 10 years ago too. It’s just that his brain doesn’t always make the spelling distinction. As a person for whom English and writing came a bit more easily, I admit I used to judge potential boyfriends on their ability to spell and use correct grammar. It was snobby, but it was a pet peeve of mine when a person wrote “your so cool” rather than “you’re so cool.” Then, the universe gave me sons with dyslexia and ADHD, which forced me to see that poor grammar and spelling aren’t always due to ignorance or a lack of intelligence or education. Sometimes poor grammar and spelling are the result of a learning disability. So, I’ve learned to relax a little bit when I see “your” instead of “you’re” or “pheasant” instead of “peasant.” Or at least I’ve learned not to judge the grammar over what is being said.

I hate to think that someone might not be able to see beyond our sons’ dyslexic spelling errors. I prefer to think that anyone who talked to them would understand they were intelligent people with grammar and spelling issues on occasion. Maybe those people will come to learn what I have. You might have to put up with some spelling confusion when dealing with a person who has dyslexia, but you might get some funny stories out of it too.

Turns Out Dr. Spock Was Right

by MeOctober 20, 20212 Comments

“Trust yourself. You know more than you think you do.” ~Dr. Benjamin Spock

Today I was thinking about the times in my twenty years as a parent when I was brave enough to follow my gut, to speak up for my children, to make the right choices for them in the face of opposition from medical professionals, family members, friends, and even random strangers who couldn’t keep from speaking up about something they knew nothing about and that was none of their business. Sometimes I made these bold moves with my voice shaking. Sometimes I made them unconsciously, simply changing a behavior without considering why I had. No matter how I managed to summon the courage in those situations, though, I trusted myself. And, as it turns out, I intuitively knew a lot more than I thought I did.

When most kids their age were starting first grade, I thought it wise to keep both our boys back a year and give them a second kindergarten experience. I simply didn’t feel they were ready. I just kept thinking that an extra year to be a child, to build basic skills, could never be a bad thing. It was odd watching boys they knew from playgroup jump ahead of them in school. It was odder still when boys who were younger than they were suddenly were in the same grade. In the end, both boys ended up being diagnosed with learning disabilities, and the extra year allowed them to fit in with their fellow students until we figured out what they needed. If they had gone to school “on time” with other children their age, they would not have been able to keep up. They weren’t ready then. Neither boy has suffered for the extra time we suggested they take to get to where they needed to be.

When Joe was 7 and finishing first grade, I remember him crying and telling me he didn’t want to go to second grade. He hated school. He actually said to me, “I’m the dumbest person in my class” (that story here). That broke my heart because 1) I knew he was not dumb at all and 2) how do you fix the shattered self-esteem of a 7 year old? So, I went out on a limb and took him to Children’s Hospital in Denver to be evaluated for ADD after Joe’s occupational therapist suggested it. It took less than an hour spent with two child psychologists and one child psychiatrist before they took me aside and told me they were positive Joe had ADHD. They suggested trying him on a low dosage of Concerta, the slow-release version of Ritalin. Joe and I agreed he should try it. Several friends thought I was crazy. How could I put my young son on a Schedule II drug? Three days after he started on it, Joe, then 8, told me he finally felt like himself. That medication changed the trajectory of his life. It allowed him to focus at school, to trust himself, to make good decisions, to grow his self-esteem. It allowed him to graduate high school with a 3.8 GPA and gave him the opportunity to be accepted at a well-respected, private liberal arts college. He and I have zero regrets about this decision.

When I told Joe’s pediatrician at his next appointment about his new prescription, he read me the riot act for not consulting him first. Didn’t I know that he could have evaluated Joe? Why wouldn’t I consult him first? He was his doctor, after all. I looked that doctor square in the face and, with a voice rising from somewhere in my gut I did not know I had, told him, “Yes. You are his doctor. You should have diagnosed this already based on all your visits with him and all the forms we filled out for you and the tests you yourself gave him in your office.” He huffed out of the room. Joe was horrified. I told him everything would be fine, and we would be finding another doctor. Ten minutes later, to his credit, the doctor returned with Joe’s chart and admitted he should have caught it. We found another pediatrician anyway.

The next pediatrician came recommended to us by a couple friends as well as Luke’s dyslexia tutor who knew him personally. The boys were at that office for six years. During that time, they became teenagers. When the doctor conducted his physical exams of the boys, I stayed in the room. I never allowed them to be alone with the doctor during the physical exam when they were undressed, even though they might have felt it invaded their privacy. To combat that, I would turn to face the wall when the doctor checked their genitalia. My main reason for remaining in the room was that the boys were not great at sharing information, and I didn’t want to miss out on what the doctor was saying or finding. My secondary reason was that when I would ask the boys on the way into the office if they wanted me to stay in the room, they always did. I knew it made me seem like a meddling, overprotective, helicopter parent. I did not care. As it turned out, that doctor was one day no longer at the practice. He was being investigated regarding claims made by other parents of inappropriate sexual touching during exams. We dodged a bullet because I stuck with my gut.

If you are a new parent, a soon-to-be parent, or a parent who is constantly questioning your decisions about your children in the present moment, I’m here to tell you that what Dr. Spock said is true. Trust yourself. Trust your intuition. No one knows your child as well as you do. Listen to them. Listen to your heart. Meet them where they are and not where you hoped or wanted them to be. And then do whatever the damn hell you want to raise your child(ren) the way that makes the most sense for your family. Ignore the naysayers, the comment makers, and the nosey Bakers. You know more than you think you do, even when you aren’t aware of it.

Never Tell Me The Odds

by MeNovember 29, 20186 Comments

My son’s prized book collection hidden behind a clay tank he created and his Pop characters

Dyslexia. For most of my life, the word conjured in me a sense of doom. Like so many people, I imagined a dyslexic person would be sentenced to a life without reading, a life without higher education, a life being thought of as a dummy. I never imagined dyslexia would touch my life. And then I tried to teach my sons to read.

Joe struggled with simple character reversals, consistently transposing b and d and 2 and 5. He couldn’t say his alphabet, always leaving letters out, skipping from p to v. His first grade teacher gave him a failing grade in reading during the first trimester that year, and I could not figure out how a child in first grade who was learning to read could be failing at it. We later discovered Joe had ADHD and mild dyslexia. Luke’s reading issues were worse than Joe’s. Luke not only transposed letters but couldn’t seem to stop confusing entire words, like what and that and the and who. When we tried to get him to read to us, he had every excuse imaginable. When he hit third grade, he began falling behind and we had him tested. Luke was diagnosed with moderate to severe dyslexia. We were told he needed to be taught to read in an entirely different way from his classmates and would either need to enter an intensive reading program for three months, which meant taking him out of school for that period, or be moved to a remedial school. I was crushed.

At that point, we made the decision to put both boys into a private school for children with learning disabilities. There they received not only reading instruction delivered in a way that allowed them to catch up to their peers, but also individualized math lessons and time with occupational and speech therapists. They began to blossom. We all began to see their strengths more than their struggles and started feeling hopeful about their prospects despite their dyslexia.

People often speak of their heroes: brave soldiers, firefighters, police officers, and selfless volunteers. I have never believed heroism belonged solely to people who save other’s lives or make immense sacrifices. I choose to find heroism in those who face adversity and rise above. My sons are my heroes. They started out behind their peers and have been working to catch up since birth. They’ve never given up. They’ve never accepted less for themselves. They’ve figured out how to embrace their strengths while working to overcome their struggles. It’s been a gift watching them develop and grow and push beyond the limitations inherent in the way their brains are set up. They inspire me.

Luke reads every day in his free time. He is not a fast reader, but he soldiers on. He challenges himself. He never quits. In seventh grade, he got 100 pages into self-chosen Mein Kampf before deciding he might not be mature enough for it yet. Last year in eighth grade Honors literature, he read White Fang, 1984, Watership Down, Of Mice and Men, as well as Jon Krakauer’s Into the Wild and Into Thin Air, and in his spare time he also read the 650-page biography of Steve Jobs and The Man in the High Castle. This summer he chose to read Homer’s The Iliad and then followed it with The Odyssey. On his Christmas list is a rare book about World War II written in 1948 by a Jewish soldier in the British army. His teacher this year assigned Bless Me, Ultima and then said she was hoping they could compare that to Like Water for Chocolate, which she hasn’t yet assigned but he has finished reading anyway. I have no idea how this is the same kid who fought us when we asked him to read Don’t Let the Pigeon Drive the Bus.

A few weeks ago Luke said something I have been turning over in my mind since. He said, “Dyslexia is not a reason not to read. It is a reason to read.” And that sums up Luke. He’s Han Solo who says, “Never tell me the odds” or John Locke from television’s Lost when he exclaims, “Don’t tell me what I can’t do.” I’ve thought a lot about his attitude, about taking what is difficult and turning it to your advantage, about being told who you are and proving them all wrong. As a child, it’s easy to take what you are told about yourself and believe it. I know I did. But I think it’s time I start looking at life through Luke-colored lenses. Maybe all the things I was told I can’t do should become all the things I have to do. By my side will be the child who has shown me what it means to believe in yourself, naysayers be damned.

The Book Without Pictures

by MeDecember 22, 20154 Comments

Few things are as burdensome to a child with dyslexia as required reading. At least, this is what I have discerned over years of working with Luke and watching him battle with text. Because the only way out is through, Luke has to work twice as hard as typical children to make half the progress in reading. With a couple years of personalized instruction in decoding (phonics for children with dyslexia) and comprehension, he has made huge strides. He has jumped four grade levels in reading in two years. He is now a sixth grader reading at fifth-grade level. Things are getting easier, but they are still not easy.

And so, reading continues to be Luke’s least favorite activity. It’s the last bit of homework he chooses to attack each night. On the rare occasions that I can convince him to read aloud so I can track his progress, I swear the process is more difficult for me than it is for him. He is painfully slow, stumbling over words most children his age would not blink twice at. He continues to interchange “what” with “that” and “why” with “who” often enough that I find myself unable to follow along with the story in places. But, along he plugs, undaunted, while I do my own decoding to keep up.

For a couple months now, I’ve watched Luke carrying around this hardback book and pulling it out during his reading period. I never really thought about it much. I knew the title, had a vague idea what the story was about and that his teacher had chosen it for him, and that was where my brain came to rest on it. It was a book about a soldier in Afghanistan who felt compelled to save the stray dogs he found there. And it combined two of Luke’s favorite topics: war and puppies.

The other day, a little disheartened to see him still lugging around and reading the same book, I asked him about it.

“Luke…how many pages do you have left in that book? It seems like you have been reading it forever,” I said.

“About fifty, I think,” he replied easily.

“How long have you been reading that book now?” I asked.

“Since October sometime, I think. I can’t remember.”

“What page are you on?” I inquired.

“249” came the reply.

I sat with this number for a while, letting it slowly seep its way into my understanding like water filtering into sand. Two hundred forty-nine pages. Two hundred. Plus forty. Plus nine. Holy crap. That is a lot of pages for Luke.

“Can I take a look at it?” I asked.

“Sure,” he said, handing me Pen Farthing’s One Dog at a Time. All 308 pages of it. I flipped to the book’s center expecting to see a slew of photographs. There were none. Next, I paged carefully through the book. Twenty five chapters. Twelve point font. No drawings. No graphics. Adult vocabulary. War theme. Full of acronyms, foreign place names, and soldier-driven terminology. Then, it hit me. My eyes grew wide. This is a grown up’s book.

“Luke, this is a serious book. I’m really proud of you for sticking with it,” I praised.

“I’ve been going extra slowly because I want to make sure I’m not missing anything,” he told me.

“If you’re going to have this book at home over Christmas Break, I’d like to read it,” I told him. “I’m thinking we can share it and then when we’re both done we can have a book club meeting about it. Maybe we can go to Red Robin, just the two of us, and talk about it?”

“Sure,” he said. “It might take me a little longer to finish it, though,” he acknowledged.
“No worries,” I replied as I handed the book back to him so he could finish up his required twenty minutes of painstaking work.

I stood there, watching him for a few minutes, reveling in how tough he is. He is a warrior. Every day as a student he goes into battle, fighting to size up, outmaneuver, and slay the beasts that would diminish his opportunities for success. He knows more about himself and about what he can and cannot do than most adults I know. He struggles. He problem solves. He strategizes. He adjusts. And, most importantly, he perseveres. While reading a 300-page book at 12 might not be a tremendous effort for many children, it’s a Herculean task for Luke. So, I hope you’ll excuse me if I appear to zone out while you remind me again about your child’s sixth consecutive semester on the Dean’s List. I mean, that’s great and all, but my dyslexic son is nearly finished reading a three-hundred page book without pictures. Clearly, I win.

A Belated Holiday Letter For All The Late Bloomers

by MeFebruary 20, 2015Leave a comment

On their way to becoming awesome…someday

I was rifling through a stack of papers on the counter yesterday and came across a holiday letter that arrived in a card from some friends of ours around Christmas. Okay. I feel your sneer of judgment. Yes. I still have holiday mail on our kitchen counter. Guess what? We still have a broken, faux Christmas tree lying on the floor in the rec room too. I’m leaving it there at least until Easter to prove how very zen I can be in the face of ridiculous things. So there. Anyway, I opened the letter and reread it. It was, as most family holiday letters are, a beautifully composed, loving tribute to our friends’ apparently flawless, exceptional, decorous, loving children. I’m a natural skeptic, so I’ve always assumed children like the ones outlined in those letters are figments of fantasy, like Santa Claus, the Tooth Fairy, and men who multitask…a charming idea, but a complete fabrication. Still, we get many letters just like that one every year, rife with phrases like Eagle Scout, straight A honor student, Varsity letter, State championships, class president, volunteer hours, and first place, which are aimed at making me believe that children like this exist in families all across this nation. It must be reality for some people.

Friends have asked me why I do not send out a letter with our Christmas cards. They figure that a writer should be at the top of the list of Persons Most Likely To Write A Holiday Letter. But I don’t because comparison is an ugly thing. We don’t have the kind of children who look good on paper. They’re off schedule and complicated and not in line with many other children their ages. In terms of learning, our children are classified as “atypical” and that doesn’t play well without lengthy and exhausting explanations. Even though we don’t write holiday letters, we think they’re awesome. We’ve just accepted that their beauty sometimes gets lost in the comparison game.

If I were to write a holiday letter, it realistically might contain paragraphs that read something like this:

Joe is thirteen and in seventh grade this year. He’s completely immersed in Pokémon and adores Japanese culture. He keeps asking when we can go to Tokyo. He used most of his Christmas money to buy Pokémon plush toys that he and his brother use in elaborate stop-motion video stories they are creating for their YouTube channel. Despite his ADHD and dyslexia, he’s making great progress at school. We are so proud that he’s using capitals and periods in his schoolwork on a more consistent basis these days. He’s still reversing his Bs and Ds, but we are hoping that he’ll have that mostly figured out by the time he’s writing college entrance essays. Joe has finally mastered the coordination and multiple steps to tie his own shoes now, which has taken one thing off my plate. He uses about 400 knots to make sure they don’t come untied, though, and that has created a different hassle as I now have to unknot his shoes each morning. Be careful what you wish for! After two years of private ski lessons, his core strength and coordination have improved enough that he has a mastery of most beginner slopes. We hope to have him exclusively skiing intermediate slopes by the end of next season. His favorite books are graphic novels, his favorite food is pasta, and his classmates call him “Puppy.” He never misses his nightly spa time, which mainly involves sitting in the bathtub while watching a continuing stream of Netflix videos on his iPad from across the room. Thank heavens he was gifted with great eyesight and the brains to know not to bring the iPad into the tub with him.

Luke is eleven now and in fifth grade. He is a talkative, class clown, and his teachers have initiated a rewards system to keep him reined in during class. So far it seems to be working because our last parent/teacher conference went off without tears. This year his decoding skills have gone off the charts and he is reading at a beginning of fourth grade level. He’s still struggling with fine motor skills and his pencil grip is downright bizarre, but his handwriting is bafflingly lovely. He loves to draw, write stories, build Legos, and watch episodes of Parks and Recreation. And, this year he began catching footballs successfully. He’s still two inches shy of being tall enough to ditch the booster seat in the car, but he’s getting there! His latest career aspiration is to be an entrepreneur/architect/engineer, but he’s planning to author books in his free time, which we think will make him quite well balanced. His sensory issues force him to sleep in a nest of blankets, pillows, and plushes, but he showers regularly, doesn’t eat in bed, and sleeps on the top bunk so we are reasonably sure there are no rodents up there with him. All is well and we are grateful.

Now, this holiday letter fodder might seem a bit hyperbolic, but overall it’s an accurate account of life with our exceptional sons. They are not straight A students. They are not athletes. They are not overachievers. They’re not on the Dean’s List. They’re not first chair in orchestra. They struggle a lot, work hard to catch up with other kids their age, and keep plugging away. They are, in every way I can see, damn near perfect human beings, emphasis on the human part. And I may never be able to write a holiday letter extolling the impressive scholastic or athletic achievements of their youth, but I could not be more proud of my young men.

I don’t begrudge any of our friends the joys of having children who are achieving at a high level already. After all, it’s a lot of work being a parent, and a smart, capable child who is excelling in many things can only do so with personal support and chauffeur services. My friends have earned the right to brag about their offspring. As for our boys, I suspect they are simply late bloomers. Sooner or later, all their hard work and dedication will pay off. And someday I’ll send out a holiday letter to share how far they have come. Our Christmas card with personal letter in 2035 might just blow your socks off.

I Got My Report Card

by MeMay 8, 2014May 8, 20144 Comments

A bunny can only learn what he has the humility to admit he doesn’t know. ~Bunny Buddhism

About five days ago we received a large and rather heavy envelope from the Havern School. From the cumbersome nature of the package, I sort of figured it was something dull (like an Annual Report) and I have no energy to deal with things like that. I’m lucky if I read all the way through the weekly email newsletters that have information I need to know (the same information, incidentally, that gets printed out and sent home in our sons’ backpacks but that I don’t get for three months because they forget to share anything that’s not a cold, a booger, or a piece of trash ). On the counter that large envelope sat while I went about my usual routine of ignoring the mail until it overwhelms the space and I am forced to reckon with it. Last night I finally opened that bad boy. Lo and behold, it was an annual report of sorts. It was the boys’ annual Academic and Therapy Reports.

As I’ve mentioned before, the boys’ school doesn’t provide traditional letter grades because students with learning disabilities typically struggle with standard assessments. Included in this large envelope was a cover letter from the Head of School explaining that “the faculty at Havern takes delight in the many other ways we observe and experience a student’s growth during the year — academically, emotionally, and socially.” In place of an online report card comprised of impersonal and mostly comment-free letter grades, I held 58 printed pages of precise information on my sons, what they have been studying, their strengths, their struggles, strategies that have helped them to improve, and recommendations on what we can work with them on over the summer. Fifty-eight frigging pages. I started to imagine that perhaps their school knows them better now than we do.

This was the first report card that reflected our sons back to me. Sure. Letter grades can offer a sense of a child’s success, but they can also mask problems. Luke had mostly A and B grades last year despite the fact that he was in third grade and had tested somewhere around a first grade reading level. These new reports, while overwhelming at first glance, provide an accurate picture of how far they’ve come and what’s next for us to tackle. The Havern School prides itself on seeing the whole child and, after flipping through the report pages, there is no doubt that the boys’ teachers, speech therapists, and occupational therapists understand and appreciate them as individuals. If you’re lucky, this is what a private education affords you.

For years while our boys were struggling and coming home with less than stellar grades, I felt like I was failing too. I mean, this is my job. I don’t work outside the home. I have no paying job. The boys are my job and, dammit, I take my job seriously. Letter grades don’t accurately reflect the amount of effort a parent puts into raising their child. Last night, though, as I leafed through the pages of the boys’ reports, I felt some validation because in with the information about how our boys are doing were words about who they are: respectful, well-mannered, reliable, hard-working, good sport, and conscientious. Admittedly, there were also some things in the reports to have a good giggle at. Luke’s report, in particular, mentioned his “enthusiasm” quite a bit. Enthusiasm is a teacher euphemism for talks-too-much-and-can’t-sit-still. And I had to smile at Joe’s occupational therapist’s mention of his “mild gravitational insecurity” when it came to climbing the school’s rock wall at the beginning of the school year. I too suffer from mild gravitational insecurity. Joe’s classroom teachers mentioned what a deep thinking young man he is. Luke’s teachers mentioned his affinity for “cute, fluffy puppies” and his tendency toward being too hard on himself.

While I may not possess the unique neurological differences that our sons have, after reading the reports there’s no mistaking that these apples fell right under their family tree. I’ve often felt sorry for our boys. Having a hyper-critical, tough-minded, perfectionist mother when you’re struggling with dyslexia probably seems like a cruel joke. I see now, though, that my drive and determination to conquer whatever I attempt has filtered into my children in a way that might actually help them in the long run. These days, I make accommodations for my sons when they reach their threshold with school work, but along the way our boys learned from me that their issues are not an excuse for lack of effort or a bad attitude. I’m beyond proud of them for coming as far as they have this school year. It seems like just yesterday I left them on the school steps in August and crossed my fingers. All year I’ve been telling them to work hard and to believe in themselves and they will land squarely where they need to be. Turns out I should have taken my own advice.

I got my report card this year and I finally believe it’s one worth celebrating.

A Mile In Their Bunny Feet

by MeMay 3, 2014May 3, 20145 Comments

This is what it's like to struggle with number formation. Go ahead and tell me I need to come in over recess. — This is what it’s like to struggle with number formation at 46. Go ahead and tell me I need to come in over recess. I may cry.

Today my husband and I received a priceless gift. We were able to experience to some degree what having dyslexia is like for our sons. The Rocky Mountain Branch of the International Dyslexia Association staged a learning seminar for parents and educators, and for an hour we were put in situations designed to recreate the frustrations dyslexics experience in the classroom. One of the greatest difficulties in parenting a child with learning disabilities when you do not have them yourself is the inability to understand exactly where they’re coming from. This disconnect has caused innumerable negative interactions with our sons over the years. When you have a bright, articulate child who shows great understanding about the world and can recite for you entire passages from a variety of Star Wars films but who can’t write a simple, grammatically correct sentence at age 11 or who can read the word phenomenal but consistently confuses the words that and what at age 10, it makes you want to tear your hair out. Things that are for you quite simple seem an insurmountable challenge to them. You just don’t get it.

Today’s event provided six opportunities to experience how difficult those simple tasks are when you have dyslexia. There were two stations for writing, two for reading and comprehension, and two for listening skills. The stations were all led by an instructor who served as our classroom teacher. She facilitated the activity, providing constant feedback (mostly in the form of well-meaning, but potentially disheartening, critiques) as we did our work. In our first station, we were given a timed test. We were only allowed to write with the hand we don’t normally use. None of us could complete the tasks in the allotted time, and our handwriting was abysmal. At the next station we wore headphones and listened to a dictated spelling test. The list was read at an average speed, but the volume was varied and the amount of background noise on the recording and in the room in general made it virtually impossible to understand the words. The “teacher” made us correct each others’ papers. For the eight of us in the group, all but one of us missed every single word out of the first six. At that point the teacher told us that we had all failed and would need to do extra work during recess. The next activity was a learn-to-read activity where the words appeared in symbolic code. We were each asked to read aloud words that had no direct correlation to anything we understood. While we struggled, the teacher constantly reminded us that our reading needed to be fluid, embarrassing us with her guidance. Next was another listening activity where we heard four teachers speaking at one time, as if we were on a field trip. We had to correctly copy down what our specific teacher was telling us, filtering out the speech of the others. Most of us missed entire sections on the worksheet. In the fifth activity, we were allowed to use our dominant hand to write but we could not look directly at our paper. Instead, we used a mirror as a guide to write words and trace lines on our paper. I could not get my hand to form the letters and numbers. I knew what I was supposed to do, but I could not make it work. I giggled uncomfortably to myself as I worked and ended with a page was full of scribbles despite my best efforts to be successful. The final activity was another read-aloud session. The text was in an unusual font and far too light, the words were written backwards, and we were asked to read from right to left. After correctly naming our alphabet prior to reading the text (the only success many of us had all hour), we all screwed up our letters while reading, reversing b and d and p and q. Afterward, we were asked to answer comprehension questions. How on earth are you supposed to answer questions about content when you spent 10-15 seconds simply trying to decode one word?

When we’d rotated through all the stations, I began taking notes on the experience. Quite a few times during the discussion after each activity, participants would tear up while explaining how frustrating it had been. We found ourselves behaving much like our children. We checked out and gave up when it got overwhelming, refusing to complete activities. Our stress took over and we became emotional, either making jokes to deflect our frustration or berating ourselves for not being better at the activity. Our hands became tired and our penmanship got worse, and we were annoyed when our teachers told us our work was sloppy and we’d have to do it again. We used strategies to compensate for our difficulties, including looking at other students’ papers to try to figure out what number we were on or what we were supposed to be doing. The entire hour was a continuous light bulb moment. I thought about my boys and some of the destructive arguments we’ve had over homework (one just this last week with Joe over paragraph writing, as a matter of fact), and my heart sank as I understood how much my words and attitude have contributed to their struggles. I felt like crap.

When we got home, we talked with our boys about our experience. We told them that we finally at least partially understood how hard things have been and continue to be for them. We told them what we had done at the seminar and how dang hard it was for us. Joe, especially, seemed thrilled to feel some true understanding from us. I know hindsight is 20/20, and you can’t go back and undo the past, but I wish I would have had this experience about five years ago. It would have saved me and my sons from some insane tantrums (mostly mine) and tears (mostly theirs).

Tonight, seeking some solace from self-loathing regarding how long I’ve been adding to my boys’ frustration about school, I found this quote in my Bunny Buddhism book:

When a bunny finds light, it does not matter how long he has been in the darkness.

I can’t go back and undo the unwitting damage caused by my naive assumptions and over reactions, but I can go forward with a more compassionate heart for both myself and my boys. Beating myself up over things I did not understand will help no one. I will never look at their issues the same way again. I’ve walked a mile in their large, fluffy bunny feet and, in doing so, I’ve stepped out of the darkness. We’re making progress, my boys and I. I’m excited that going forward we’ll be hopping along together in much better light.