dyslexia

Never Tell Me The Odds

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My son’s prized book collection hidden behind a clay tank he created and his Pop characters

Dyslexia. For most of my life, the word conjured in me a sense of doom. Like so many people, I imagined a dyslexic person would be sentenced to a life without reading, a life without higher education, a life being thought of as a dummy. I never imagined dyslexia would touch my life. And then I tried to teach my sons to read.

Joe struggled with simple character reversals, consistently transposing b and d and 2 and 5. He couldn’t say his alphabet, always leaving letters out, skipping from p to v. His first grade teacher gave him a failing grade in reading during the first trimester that year, and I could not figure out how a child in first grade who was learning to read could be failing at it. We later discovered Joe had ADHD and mild dyslexia. Luke’s reading issues were worse than Joe’s. Luke not only transposed letters but couldn’t seem to stop confusing entire words, like what and that and the and who. When we tried to get him to read to us, he had every excuse imaginable. When he hit third grade, he began falling behind and we had him tested. Luke was diagnosed with moderate to severe dyslexia. We were told he needed to be taught to read in an entirely different way from his classmates and would either need to enter an intensive reading program for three months, which meant taking him out of school for that period, or be moved to a remedial school. I was crushed.

At that point, we made the decision to put both boys into a private school for children with learning disabilities. There they received not only reading instruction delivered in a way that allowed them to catch up to their peers, but also individualized math lessons and time with occupational and speech therapists. They began to blossom. We all began to see their strengths more than their struggles and started feeling hopeful about their prospects despite their dyslexia.

People often speak of their heroes: brave soldiers, firefighters, police officers, and selfless volunteers. I have never believed heroism belonged solely to people who save other’s lives or make immense sacrifices. I choose to find heroism in those who face adversity and rise above. My sons are my heroes. They started out behind their peers and have been working to catch up since birth. They’ve never given up. They’ve never accepted less for themselves. They’ve figured out how to embrace their strengths while working to overcome their struggles. It’s been a gift watching them develop and grow and push beyond the limitations inherent in the way their brains are set up. They inspire me.

Luke reads every day in his free time. He is not a fast reader, but he soldiers on. He challenges himself. He never quits. In seventh grade, he got 100 pages into self-chosen Mein Kampf before deciding he might not be mature enough for it yet. Last year in eighth grade Honors literature, he read White Fang, 1984, Watership Down, Of Mice and Men, as well as Jon Krakauer’s Into the Wild and Into Thin Air, and in his spare time he also read the 650-page biography of Steve Jobs and The Man in the High Castle. This summer he chose to read Homer’s The Iliad and then followed it with The Odyssey. On his Christmas list is a rare book about World War II written in 1948 by a Jewish soldier in the British armyHis teacher this year assigned Bless Me, Ultima and then said she was hoping they could compare that to Like Water for Chocolate, which she hasn’t yet assigned but he has finished reading anyway. I have no idea how this is the same kid who fought us when we asked him to read Don’t Let the Pigeon Drive the Bus.

A few weeks ago Luke said something I have been turning over in my mind since. He said, “Dyslexia is not a reason not to read. It is a reason to read.” And that sums up Luke. He’s Han Solo who says, “Never tell me the odds” or John Locke from television’s Lost when he exclaims, “Don’t tell me what I can’t do.” I’ve thought a lot about his attitude, about taking what is difficult and turning it to your advantage, about being told who you are and proving them all wrong. As a child, it’s easy to take what you are told about yourself and believe it. I know I did. But I think it’s time I start looking at life through Luke-colored lenses. Maybe all the things I was told I can’t do should become all the things I have to do. By my side will be the child who has shown me what it means to believe in yourself, naysayers be damned.

The Book Without Pictures

ImageFew things are as burdensome to a child with dyslexia as required reading. At least, this is what I have discerned over years of working with Luke and watching him battle with text. Because the only way out is through, Luke has to work twice as hard as typical children to make half the progress in reading. With a couple years of personalized instruction in decoding (phonics for children with dyslexia) and comprehension, he has made huge strides. He has jumped four grade levels in reading in two years. He is now a sixth grader reading at fifth-grade level. Things are getting easier, but they are still not easy.

And so, reading continues to be Luke’s least favorite activity. It’s the last bit of homework he chooses to attack each night. On the rare occasions that I can convince him to read aloud so I can track his progress, I swear the process is more difficult for me than it is for him. He is painfully slow, stumbling over words most children his age would not blink twice at. He continues to interchange “what” with “that” and “why” with “who” often enough that I find myself unable to follow along with the story in places. But, along he plugs, undaunted, while I do my own decoding to keep up.

For a couple months now, I’ve watched Luke carrying around this hardback book and pulling it out during his reading period. I never really thought about it much. I knew the title, had a vague idea what the story was about and that his teacher had chosen it for him, and that was where my brain came to rest on it. It was a book about a soldier in Afghanistan who felt compelled to save the stray dogs he found there. And it combined two of Luke’s favorite topics: war and puppies.

The other day, a little disheartened to see him still lugging around and reading the same book, I asked him about it.

“Luke…how many pages do you have left in that book? It seems like you have been reading it forever,” I said.

“About fifty, I think,” he replied easily.

“How long have you been reading that book now?” I asked.

“Since October sometime, I think. I can’t remember.”

“What page are you on?” I inquired.

“249” came the reply.

I sat with this number for a while, letting it slowly seep its way into my understanding like water filtering into sand. Two hundred forty-nine pages. Two hundred. Plus forty. Plus nine. Holy crap. That is a lot of pages for Luke.

“Can I take a look at it?” I asked.

“Sure,” he said, handing me Pen Farthing’s One Dog at a Time. All 308 pages of it. I flipped to the book’s center expecting to see a slew of photographs. There were none. Next, I paged carefully through the book. Twenty five chapters. Twelve point font. No drawings. No graphics. Adult vocabulary. War theme. Full of acronyms, foreign place names, and soldier-driven terminology. Then, it hit me. My eyes grew wide. This is a grown up’s book.

“Luke, this is a serious book. I’m really proud of you for sticking with it,” I praised.

“I’ve been going extra slowly because I want to make sure I’m not missing anything,” he told me.

“If you’re going to have this book at home over Christmas Break, I’d like to read it,” I told him. “I’m thinking we can share it and then when we’re both done we can have a book club meeting about it. Maybe we can go to Red Robin, just the two of us, and talk about it?”

“Sure,” he said. “It might take me a little longer to finish it, though,” he acknowledged.
“No worries,” I replied as I handed the book back to him so he could finish up his required twenty minutes of painstaking work.

I stood there, watching him for a few minutes, reveling in how tough he is. He is a warrior. Every day as a student he goes into battle, fighting to size up, outmaneuver, and slay the beasts that would diminish his opportunities for success. He knows more about himself and about what he can and cannot do than most adults I know. He struggles. He problem solves. He strategizes. He adjusts. And, most importantly, he perseveres. While reading a 300-page book at 12 might not be a tremendous effort for many children, it’s a Herculean task for Luke. So, I hope you’ll excuse me if I appear to zone out while you remind me again about your child’s sixth consecutive semester on the Dean’s List. I mean, that’s great and all, but my dyslexic son is nearly finished reading a three-hundred page book without pictures. Clearly, I win.

A Belated Holiday Letter For All The Late Bloomers

On their way to becoming awesome…someday

On their way to becoming awesome…someday

I was rifling through a stack of papers on the counter yesterday and came across a holiday letter that arrived in a card from some friends of ours around Christmas. Okay. I feel your sneer of judgment. Yes. I still have holiday mail on our kitchen counter. Guess what? We still have a broken, faux Christmas tree lying on the floor in the rec room too. I’m leaving it there at least until Easter to prove how very zen I can be in the face of ridiculous things. So there. Anyway, I opened the letter and reread it. It was, as most family holiday letters are, a beautifully composed, loving tribute to our friends’ apparently flawless, exceptional, decorous, loving children. I’m a natural skeptic, so I’ve always assumed children like the ones outlined in those letters are figments of fantasy, like Santa Claus, the Tooth Fairy, and men who multitask…a charming idea, but a complete fabrication. Still, we get many letters just like that one every year, rife with phrases like Eagle Scoutstraight A honor studentVarsity letter, State championships, class president, volunteer hours, and first place, which are aimed at making me believe that children like this exist in families all across this nation. It must be reality for some people.

Friends have asked me why I do not send out a letter with our Christmas cards. They figure that a writer should be at the top of the list of Persons Most Likely To Write A Holiday Letter. But I don’t because comparison is an ugly thing. We don’t have the kind of children who look good on paper. They’re off schedule and complicated and not in line with many other children their ages. In terms of learning, our children are classified as “atypical” and that doesn’t play well without lengthy and exhausting explanations. Even though we don’t write holiday letters, we think they’re awesome. We’ve just accepted that their beauty sometimes gets lost in the comparison game.

If I were to write a holiday letter, it realistically might contain paragraphs that read something like this:

Joe is thirteen and in seventh grade this year. He’s completely immersed in Pokémon and adores Japanese culture. He keeps asking when we can go to Tokyo. He used most of his Christmas money to buy Pokémon plush toys that he and his brother use in elaborate stop-motion video stories they are creating for their YouTube channel. Despite his ADHD and dyslexia, he’s making great progress at school. We are so proud that he’s using capitals and periods in his schoolwork on a more consistent basis these days. He’s still reversing his Bs and Ds, but we are hoping that he’ll have that mostly figured out by the time he’s writing college entrance essays. Joe has finally mastered the coordination and multiple steps to tie his own shoes now, which has taken one thing off my plate. He uses about 400 knots to make sure they don’t come untied, though, and that has created a different hassle as I now have to unknot his shoes each morning. Be careful what you wish for! After two years of private ski lessons, his core strength and coordination have improved enough that he has a mastery of most beginner slopes. We hope to have him exclusively skiing intermediate slopes by the end of next season. His favorite books are graphic novels, his favorite food is pasta, and his classmates call him “Puppy.” He never misses his nightly spa time, which mainly involves sitting in the bathtub while watching a continuing stream of Netflix videos on his iPad from across the room. Thank heavens he was gifted with great eyesight and the brains to know not to bring the iPad into the tub with him.

Luke is eleven now and in fifth grade. He is a talkative, class clown, and his teachers have initiated a rewards system to keep him reined in during class. So far it seems to be working because our last parent/teacher conference went off without tears. This year his decoding skills have gone off the charts and he is reading at a beginning of fourth grade level. He’s still struggling with fine motor skills and his pencil grip is downright bizarre, but his handwriting is bafflingly lovely. He loves to draw, write stories, build Legos, and watch episodes of Parks and Recreation. And, this year he began catching footballs successfully. He’s still two inches shy of being tall enough to ditch the booster seat in the car, but he’s getting there! His latest career aspiration is to be an entrepreneur/architect/engineer, but he’s planning to author books in his free time, which we think will make him quite well balanced. His sensory issues force him to sleep in a nest of blankets, pillows, and plushes, but he showers regularly, doesn’t eat in bed, and sleeps on the top bunk so we are reasonably sure there are no rodents up there with him.  All is well and we are grateful. 

Now, this holiday letter fodder might seem a bit hyperbolic, but overall it’s an accurate account of life with our exceptional sons. They are not straight A students. They are not athletes. They are not overachievers. They’re not on the Dean’s List. They’re not first chair in orchestra. They struggle a lot, work hard to catch up with other kids their age, and keep plugging away. They are, in every way I can see, damn near perfect human beings, emphasis on the human part. And I may never be able to write a holiday letter extolling the impressive scholastic or athletic achievements of their youth, but I could not be more proud of my young men.

I don’t begrudge any of our friends the joys of having children who are achieving at a high level already. After all, it’s a lot of work being a parent, and a smart, capable child who is excelling in many things can only do so with personal support and chauffeur services. My friends have earned the right to brag about their offspring. As for our boys, I suspect they are simply late bloomers. Sooner or later, all their hard work and dedication will pay off. And someday I’ll send out a holiday letter to share how far they have come. Our Christmas card with personal letter in 2035 might just blow your socks off.

I Got My Report Card

So proud of these little monkeys

So proud of these little monkeys

A bunny can only learn what he has the humility to admit he doesn’t know. ~Bunny Buddhism

About five days ago we received a large and rather heavy envelope from the Havern School. From the cumbersome nature of the package, I sort of figured it was something dull (like an Annual Report) and I have no energy to deal with things like that. I’m lucky if I read all the way through the weekly email newsletters that have information I need to know (the same information, incidentally, that gets printed out and sent home in our sons’ backpacks but that I don’t get for three months because they forget to share anything that’s not a cold, a booger, or a piece of trash ). On the counter that large envelope sat while I went about my usual routine of ignoring the mail until it overwhelms the space and I am forced to reckon with it. Last night I finally opened that bad boy. Lo and behold, it was an annual report of sorts. It was the boys’ annual Academic and Therapy Reports.

As I’ve mentioned before, the boys’ school doesn’t provide traditional letter grades because students with learning disabilities typically struggle with standard assessments. Included in this large envelope was a cover letter from the Head of School explaining that “the faculty at Havern takes delight in the many other ways we observe and experience a student’s growth during the year — academically, emotionally, and socially.” In place of an online report card comprised of impersonal and mostly comment-free letter grades, I held 58 printed pages of precise information on my sons, what they have been studying, their strengths, their struggles, strategies that have helped them to improve, and recommendations on what we can work with them on over the summer. Fifty-eight frigging pages. I started to imagine that perhaps their school knows them better now than we do.

This was the first report card that reflected our sons back to me. Sure. Letter grades can offer a sense of a child’s success, but they can also mask problems. Luke had mostly A and B grades last year despite the fact that he was in third grade and had tested somewhere around a first grade reading level. These new reports, while overwhelming at first glance, provide an accurate picture of how far they’ve come and what’s next for us to tackle. The Havern School prides itself on seeing the whole child and, after flipping through the report pages, there is no doubt that the boys’ teachers, speech therapists, and occupational therapists understand and appreciate them as individuals. If you’re lucky, this is what a private education affords you.

For years while our boys were struggling and coming home with less than stellar grades, I felt like I was failing too. I mean, this is my job. I don’t work outside the home. I have no paying job. The boys are my job and, dammit, I take my job seriously. Letter grades don’t accurately reflect the amount of effort a parent puts into raising their child. Last night, though, as I leafed through the pages of the boys’ reports, I felt some validation because in with the information about how our boys are doing were words about who they are: respectful, well-mannered, reliable, hard-working, good sport, and conscientious. Admittedly, there were also some things in the reports to have a good giggle at. Luke’s report, in particular, mentioned his “enthusiasm” quite a bit. Enthusiasm is a teacher euphemism for talks-too-much-and-can’t-sit-still. And I had to smile at Joe’s occupational therapist’s mention of his  “mild gravitational insecurity” when it came to climbing the school’s rock wall at the beginning of the school year. I too suffer from mild gravitational insecurity. Joe’s classroom teachers mentioned what a deep thinking young man he is. Luke’s teachers mentioned his affinity for “cute, fluffy puppies” and his tendency toward being too hard on himself.

While I may not possess the unique neurological differences that our sons have, after reading the reports there’s no mistaking that these apples fell right under their family tree. I’ve often felt sorry for our boys. Having a hyper-critical, tough-minded, perfectionist mother when you’re struggling with dyslexia probably seems like a cruel joke. I see now, though, that my drive and determination to conquer whatever I attempt has filtered into my children in a way that might actually help them in the long run. These days, I make accommodations for my sons when they reach their threshold with school work, but along the way our boys learned from me that their issues are not an excuse for lack of effort or a bad attitude. I’m beyond proud of them for coming as far as they have this school year. It seems like just yesterday I left them on the school steps in August and crossed my fingers. All year I’ve been telling them to work hard and to believe in themselves and they will land squarely where they need to be. Turns out I should have taken my own advice.

I got my report card this year and I finally believe it’s one worth celebrating.

 

A Mile In Their Bunny Feet

This is what it's like to struggle with number formation. Go ahead and tell me I need to come in over recess.

This is what it’s like to struggle with number formation at 46. Go ahead and tell me I need to come in over recess. I may cry.

Today my husband and I received a priceless gift. We were able to experience to some degree what having dyslexia is like for our sons. The Rocky Mountain Branch of the International Dyslexia Association staged a learning seminar for parents and educators, and for an hour we were put in situations designed to recreate the frustrations dyslexics experience in the classroom. One of the greatest difficulties in parenting a child with learning disabilities when you do not have them yourself is the inability to understand exactly where they’re coming from. This disconnect has caused innumerable negative interactions with our sons over the years. When you have a bright, articulate child who shows great understanding about the world and can recite for you entire passages from a variety of Star Wars films but who can’t write a simple, grammatically correct sentence at age 11 or who can read the word phenomenal but consistently confuses the words that and what at age 10, it makes you want to tear your hair out. Things that are for you quite simple seem an insurmountable challenge to them. You just don’t get it.

Today’s event provided six opportunities to experience how difficult those simple tasks are when you have dyslexia. There were two stations for writing, two for reading and comprehension, and two for listening skills. The stations were all led by an instructor who served as our classroom teacher. She facilitated the activity, providing constant feedback (mostly in the form of well-meaning, but potentially disheartening, critiques) as we did our work. In our first station, we were given a timed test. We were only allowed to write with the hand we don’t normally use. None of us could complete the tasks in the allotted time, and our handwriting was abysmal. At the next station we wore headphones and listened to a dictated spelling test. The list was read at an average speed, but the volume was varied and the amount of background noise on the recording and in the room in general made it virtually impossible to understand the words. The “teacher” made us correct each others’ papers. For the eight of us in the group, all but one of us missed every single word out of the first six. At that point the teacher told us that we had all failed and would need to do extra work during recess. The next activity was a learn-to-read activity where the words appeared in symbolic code. We were each asked to read aloud words that had no direct correlation to anything we understood. While we struggled, the teacher constantly reminded us that our reading needed to be fluid, embarrassing us with her guidance. Next was another listening activity where we heard four teachers speaking at one time, as if we were on a field trip. We had to correctly copy down what our specific teacher was telling us, filtering out the speech of the others. Most of us missed entire sections on the worksheet. In the fifth activity, we were allowed to use our dominant hand to write but we could not look directly at our paper. Instead, we used a mirror as a guide to write words and trace lines on our paper. I could not get my hand to form the letters and numbers. I knew what I was supposed to do, but I could not make it work. I giggled uncomfortably to myself as I worked and ended with a page was full of scribbles despite my best efforts to be successful. The final activity was another read-aloud session. The text was in an unusual font and far too light, the words were written backwards, and we were asked to read from right to left. After correctly naming our alphabet prior to reading the text (the only success many of us had all hour), we all screwed up our letters while reading, reversing b and d and p and q. Afterward, we were asked to answer comprehension questions. How on earth are you supposed to answer questions about content when you spent 10-15 seconds simply trying to decode one word?

When we’d rotated through all the stations, I began taking notes on the experience. Quite a few times during the discussion after each activity, participants would tear up while explaining how frustrating it had been. We found ourselves behaving much like our children. We checked out and gave up when it got overwhelming, refusing to complete activities. Our stress took over and we became emotional, either making jokes to deflect our frustration or berating ourselves for not being better at the activity. Our hands became tired and our penmanship got worse, and we were annoyed when our teachers told us our work was sloppy and we’d have to do it again. We used strategies to compensate for our difficulties, including looking at other students’ papers to try to figure out what number we were on or what we were supposed to be doing. The entire hour was a continuous light bulb moment. I thought about my boys and some of the destructive arguments we’ve had over homework (one just this last week with Joe over paragraph writing, as a matter of fact), and my heart sank as I understood how much my words and attitude have contributed to their struggles. I felt like crap.

When we got home, we talked with our boys about our experience. We told them that we finally at least partially understood how hard things have been and continue to be for them. We told them what we had done at the seminar and how dang hard it was for us. Joe, especially, seemed thrilled to feel some true understanding from us. I know hindsight is 20/20, and you can’t go back and undo the past, but I wish I would have had this experience about five years ago. It would have saved me and my sons from some insane tantrums (mostly mine) and tears (mostly theirs).

Tonight, seeking some solace from self-loathing regarding how long I’ve been adding to my boys’ frustration about school, I found this quote in my Bunny Buddhism book:

When a bunny finds light, it does not matter how long he has been in the darkness.

I can’t go back and undo the unwitting damage caused by my naive assumptions and over reactions, but I can go forward with a more compassionate heart for both myself and my boys. Beating myself up over things I did not understand will help no one. I will never look at their issues the same way again. I’ve walked a mile in their large, fluffy bunny feet and, in doing so, I’ve stepped out of the darkness. We’re making progress, my boys and I. I’m excited that going forward we’ll be hopping along together in much better light.

Our Perpetual Lady of Slow Learners

Lovely couple of kids

Lovely couple of kids

If there’s one thing I’ve learned through my journey as a parent, it’s that expectations can be your undoing. In terms of expectations, mothers are doomed from the start. From the day we pee on a stick and see pink lines, we are an expectant mother. Our pregnancy bible is entitled What To Expect When You’re Expecting, and we devour the information between its covers because pregnancy is so new and different and impending parenthood is equal parts exhilaration and terror. We want to be prepared…as much as anyone can be prepared for the arrival of something so much a part of oneself and yet totally unlike anything anywhere else. While our children begin their lives unencumbered by the existence of expectations, we embark on our parental career ready to measure them against the rubric of the typical. And that’s the point when we make our first big mistake.

I knew fairly early on that our sons were not typical. They did not follow growth and development charts. They were on their own schedules. Things their peers were readily learning, our sons could not. They skipped letters in the alphabet  and struggled to write their own names. They were uncoordinated with sports and were unable catch a ball or skip or follow rhythm. Physicians noted their shortfalls while reassuring us that they were fine. In school, they displayed obvious intellect while retelling stories or playing creatively, but rote memorization of math facts escaped them. They began to get poor marks on tests science and social studies tests despite knowing the answers when asked orally. We were frustrated. We knew they were intelligent, but their grades didn’t reflect it. Teachers told me they weren’t trying, but I knew how hard they worked. I could see their constant struggle to keep up and fit in with expectations they now innately understood by watching their classmates and receiving their report cards. When we finally realized that they had learning disabilities, the damage had been done. Our sons no longer believed they could be successful. Expectations were crushing them.

This year we pulled them out of traditional school and did what we swore we would not. We put them into a special school, a school for children who think differently, a school for the atypical. We’d been hesitant to take this route, fearful of pointing out to them and to others that they weren’t measuring up in regular schools. But the time for denial being a river in Egypt was over. They needed help…no matter what that help looked like. Their new school was a big adjustment for me. You see, there are no grades there. None. Kids aren’t in 4th grade and they don’t earn letter grades. They’re not evaluated that way, and teachers and students don’t discuss grades. They discuss progress. They discuss solutions to struggles. While the kids are evaluated regularly, they are assessed solely on improvement. If they’re improving, they’re on the right track. If they’re not improving, it’s time to re-evaluate how they might learn better and pursue a different route. It’s so simple it’s scary.

And, honestly, this new system of analysis did scare me. I was so tied to our traditional conventions that the variation seemed dubious. As a culture, we subsist on numbers and quantitative results. Our conversations with other parents about our children often revolve around concrete standards. Bobby came in First at State. Jimmy has a 4.0. Sue got a 1300 on her SATs. Hey. I get it. It’s an accomplishment and a feather in our caps when our child is successful in a way that we can readily point out. I know from personal experience, though, the other side of that equation. When our sons were earning C and D grades, I perpetually feared having someone ask me about their report cards. I knew that based on their grades our boys would be marked as sub par by others, and that was frightening. And now when they’re getting no grades, well that’s even scarier. When you tell someone your son is “around the 4th grade level and is a consistently improving student,” they look at you as if you’re sporting three heads. No one is up for flexible standards of personal success although that is the only type of personal success there is…the personal kind.

If we’re going to live by expectations (which we seem bound by human nature to do), perhaps we could be a bit more flexible with our assessment of others? We could accept steady improvement as our rubric. We could value overall forward progress over typical milestones because the truth is that not everyone is typical in every way. Our sons are slow learners because their brains process information differently than the majority. So what? It’s taken me almost 46 years to believe that a piece of paper doesn’t prove wisdom and all the outward success in the world doesn’t make you a better person than the next guy, and that makes me a pretty slow learner too. I’m learning to let go of expectations and becoming more patient with myself and with others. It might be two steps forward and one step back, but I’m making progress just like my sons. By the end of my life, I like to think I will have evolved not just to standards but beyond them in ways that are immeasurable.

I threw away the books that told me how my children should be. I now appreciate them for how they are.

Just Keeping It Real

Shouldn't every boy's bathroom come with a portable television?

Shouldn’t every boy’s bathroom come with an iPad television?

Since the school year began, I’ve had several opportunities to volunteer at our boys’ new school. While the main goal of these volunteer sessions has been to meet our household required number of volunteer hours, I’ve had the good fortune to spend most of those volunteer hours with my sons among their new friends. I went on a field trip with Joe to Sports Authority Field at Mile High to tour Broncos headquarters with his classmates. I worked at the annual Scholastic Book Fair and helped my sons select a plethora of new books for our ever-growing library of graphic novels. And, today, I helped the boys and their classmates make pies for Havern‘s annual Thanksgiving Day feast, which will be held this Wednesday during the boys’ regularly scheduled lunch times. The classes make the apple and pumpkin pies that the families will eat during that luncheon. It’s both a cost-saving measure (child labor is cheap, you know) and a way for the kids to gain some new skills while working with the occupational therapy team.

During my volunteer session today, I got to watch Luke in action as he used one of those fancy apple peeler/corer/slicer gadgets that always seem like such an awesome thing until you discover all it really does in your house is collect dust back in the corner of a rarely opened cupboard. So there Luke was, quickly and artfully using the gadget that, frankly, I’ve been afraid to buy for fear of peeling, coring, and slicing off my own hand. I was impressed by how he took to the task and how deftly he was managing to use that thing without requiring dozens of stitches. After Luke had whipped through the murder of no less than six apples without any personal or property damage, it was time to turn the apple spirals into slices for the pie.

Luke’s occupational therapist explained to the kids that they could unwind and tear the spirals into slices small enough to be tossed with lemon juice, sugar, and cinnamon for the pie filling. And so several children began doing just that. I grabbed an apple too and meticulously began tearing a half of each spiral layer off into a perfect apple slice while Luke stood and watched everyone for a minute. At last with great flourish he seized an apple.

“Wouldn’t it go a lot faster if you just did this?” he asked as he simultaneously tore the peeled, cored, and spiral-sliced apple in half lengthwise through the missing apple core. There he stood with half the slices in one hand and the other half the slices in the other hand, looking at us all as if we were daft for not thinking of it first.

Now I’m not ashamed to admit that my 10-year-old son figured out this simple and speedy solution while I dutifully followed the instructions of the person in charge. I’m also not ashamed to admit that his idea never even crossed my mind. I was too dang busy being proud of my baby for not following directions and for instead thinking outside the box and using his incredible spatial reasoning skills to cut through, quite literally, the core of the task. I love how Luke’s mind works. I see it when he looks at a photo of a Lego creation and describes to me how it goes together before ever opening the box or unwrapping one plastic block. I see it when he envisions a completed piece of art in his head and offers me a list of every item he will need to fabricate it. Luke’s spatial skills remind me that his dyslexia is a gift. His brain works differently, and it is awesome.

The career of stay-at-home mom is often thankless, exhausting, and unnoticed. The days when you feel truly invigorated and confident are few and far between. Tonight I was enjoying Luke’s success vicariously by dreaming that somewhere along the line I’ve done something to contribute to his mental growth in a positive, outwardly visible way. Then, in the midst of my gleeful reverie, I heard my name being called loudly from down the hall.

“Mom….Mom??” the cry came from the boys’ bathroom. It was Joe.

“What?” I bellowed back.

“Mom…I need you. It’s important,” he called. And dutifully off I went to the bathroom.

There I found Joe taking his ritual evening bath. He had his iPad propped up against the tissue box holder. I noted with an eye roll that Monday Night Football was on the screen. I love how my boys have turned their iPads into portable television sets. Rough lives they lead those two.

“What, Joe?” I asked without attempting to hide my annoyance.

“Can you hit Dismiss, please?” he asked.

It was then that I noticed that the game was paused because his iPad battery was at 10%. Ugh.  Are you kidding me? Welcome to the story of my life as Mom. Just when I’m feeling validated about my decision to stay home and raise these two school-struggling children into intelligent, decent, and reasonable human beings, one of them reminds me that I’m merely here to keep things up and running. Yep. My boys are all about making sure I’m keeping it real.

 

 

 

The Forest For The Trees

The beginning of a grand new chapter...

The beginning of a grand new chapter…

Back to school time in our house, like many other homes, is marked by stress, uncertainty, and readjustment. Aside from the usual tension surrounding school re-entry, I have had the burden of wondering how our children would fare during another traditional school year and how their new teachers would adapt to their different learning needs and my requests for special accommodations for them. Honestly, I never know what to expect, and traditionally it has taken me some seriously positive self-talk to get through the first two weeks of school. (Well, self-talk and wine. Who are we kidding?)

My heightened level of personal anxiety surrounding the advent of the school year began the day Joe started Junior Kindergarten. That day, I walked him into his classroom as I had done in previous years to ease the apprehension of my nervous boy. I’d enrolled him in as many years of preschool as possible because I knew he would benefit from extra adjustment time. He was five then and beginning his third classroom experience. I was cautiously optimistic that upon meeting his teacher he would smile his shy little smile but remain quiet and be the sweet, deep-thinking little fellow he was at home. Instead, when his teacher Mrs. Smith approached him to introduce herself, Joe dropped to all fours and began to bark. I am not kidding. He was on all fours. Barking. To compound an already embarrassing situation, Joe had speech issues and his “woofs” were not woofs at all but were actually “wooks.” There he was, crawling around the floor in front of the other kids, wooking. It was awkward at best. The other parents looked at me sideways with bemused pity. The teacher, smiling politely, asked me what he was doing. I had to tell her that apparently he was pretending to be a dog and barking his own introduction, something he had never done before. At that point, I turned 50 shades of red, kissed my puppy on the head, wished Mrs. Smith well, and walked out. I cried most of the way home. And thus began my less than stellar experience with back to school. Sigh.

This year my back to school stress was compounded by the fact that they were starting at a new school. There was a whole new list of variables for me. New teachers and school staff I had not yet met. New classrooms. New pick-up and drop-off routines. New parents to meet. New procedures to learn. It was all way too much newness for introverted me. I went bravely forward with it, though, because Havern is a school for children with learning disabilities. For nearly a half a century they have been offering hope to parents like me with kids like Joe and Luke. If any school could offer the breakthrough chance our dyslexic sons need to get on track with learning, to achieve the way in which they are capable, and to at last feel smart despite their differences, Havern was it.

On the first day of school, both boys seemed surprisingly calm. I walked them to their classrooms and introduced them to their teachers. There were no barking dog incidents, so I left feeling fairly optimistic. When pick up time arrived, I stood on the lawn waiting for them to be dismissed to my care, praying that the day had gone well for them and that they were indeed committed to this change in their education. Joe ran out first and confidently announced that he had the “best school day ever.” Luke quickly followed and told me that his new school was “epic.” (I have no doubt this pronouncement was impacted by the knowledge that the school has a Lego Club.) I almost asked the principal to verify that my boys had truly been in school all day. Perhaps she could pinch me because this could not possibly be my reality. It was surreal.

I have spent most of the past six years running the gamut of emotions, vacillating between denial, anger, depression, anxiety, disappointment, frustration, and even bitterness about our sons’ developmental and learning issues. I’ve wondered why them and why me? I’ve felt lost, just as they have. Tonight, though, after attending Back to School night and talking with other parents and the boys’ teachers, after sitting in their classrooms and looking at their class schedules, I finally see the forest for the trees. Our boys are not broken, and they never have been. They just hadn’t found their place yet. Tonight my dreams for them came true. They’ve finally found a home.

You’re Unique…Just Like Everyone Else

My "different" children

My “different” children

“Always remember you’re unique…just like everyone else.”

One of the biggest challenges being a kid with a learning difficulty is feeling different. I’ve watched both my sons as they tried to acclimate themselves to their differences at school and, by far, the biggest stress they faced was worrying about what the other kids would think of them. Joe, for about a year, did not tell anyone about his ADHD. He simply was not comfortable. He worked hard to try to fit in and that was how he wanted to deal with it. Eventually, he told a few friends who handled it just as I expected they would. They did not care. They attend a small school, and this group of 13 children have been together for 5 years. To his classmates, Joe is just Joe and knowing about his ADHD didn’t make him any different. When Luke was diagnosed with dyslexia in November, he also was adamant that he did not want anyone to know. I didn’t push him into telling anyone because I respected his apprehension, but I did mention to him (with permission) that his friend Annie Oakley (not her real name) also had struggles. I suggested that it might be good if both of them could talk to each other about their difficulties. He looked at me dubiously and took my counsel under advisement.

Early this past week, out of nowhere, Luke announced to most of his classmates that he had dyslexia. Like Joe’s classmates, they looked at him with a quizzical so-what attitude and moved on. No one understood or cared or asked questions. It was no big deal…with one exception. His partner in crime and fellow horse-lover friend, Annie, immediately glommed onto him, happy to have someone with whom to share her differences. Right after Luke’s confession, he got into the car and declared that he and Annie needed to have a play date (I love that he still uses that term) soon so they could “talk.” I thought that was about the cutest thing ever, so I set up a time for Annie to come to our house on Friday and stay for play time and dinner. The two of them were so excited they could barely focus at all at school before the play date. As proof, I offer up Luke’s spelling test grade, which has never been great but this week hit an all time low of 52% on a list that was not the toughest one he’s ever faced. Their palpable excitement would have been amusing if it weren’t exhausting me.

We had scarcely gotten everyone settled in the car Friday afternoon and weren’t even out of the school parking lot when Luke piped up.

“Okay. So, let’s talk about this ADHD and dyslexia thing.”

Instantly, Annie opened up. She told our boys about how she found out about her ADD and how her life has changed since her parents told her. She and Joe talked about attention-deficit with each other, and she and Luke talked about how hard it was needing special accommodations at school. They all talked about how demanding school was and how much they grappled with reading and timed tests. They talked about it non-stop for 20 minutes on the ride home, sharing stories, successes, and tips. They all felt comfortable about their differences because for those 20 minutes they weren’t different at all. It was, by far, the best 20 minutes I have ever spent in a car with children who weren’t sleeping. I was a fly on the wall for the most genuinely sincere conversation my boys have shared about their trials. Listening to them open up and, above all, be at peace with themselves was the greatest gift I’ve received since learning about their amazing brains.

The rest of the play date was a rousing success. The three of them had a blast being the funny and ingenious kids they are. They took turns making videos with Luke’s iPad as they pretended to be news reporters, fashion icons, and pop stars. Luke hammed it up for the camera with long, improvisational monologues that kept the others in stitches. At one point, Joe was wearing one of my dresses over his jeans and t-shirt and was topped off with a tangled mullet wig as he sang into a magic marker. My sons may not be A students, but their creativity knows no bounds. And Annie, who I have always regarded as very bright and sweet, met them as an equal the entire time. Hubby made his famous chicken nuggets and handcrafted milkshakes for them and that was the only time they were still and semi-quiet all afternoon.

When they were young and I had no experience with children, I had a hard time recognizing that our boys didn’t fit in with their peers, mostly likely because I didn’t want to admit it. Even when their teachers made reference to slower progress, I reasoned it away as late-bloomer syndrome. I subjected them repeatedly to age-appropriate activities that the books said they should be able to do but at which they continued to flounder. I could not understand why school was so difficult for them when they were creative problem solvers who made connections between disparate topics with ease. I grew increasingly frustrated when by age 8 they could not yet ride a bicycle or tie their shoes despite constant instruction. When it was spelled out to me by professionals that my children had actual, brain-related differences from other children, I was heartbroken. This was not what I expected when I signed up for parenthood. I thought we would have children who sailed through school like hubby and I did. No one wants their child to be “different” because “different” kids get beaten up. Eventually, though, to help them come to terms with their differences I had to make my peace with them. I stopped looking at my sons through the eyes of the struggles I knew they would have and instead allowed myself to see the benefits their unique brains would provide them. Sometimes thinking differently can make you highly successful. You need look no further than Richard Branson, Steven Spielberg, or Ted Turner to recognize that. The other day, though, I have to admit that it felt pretty good to see them play in a group and feel for a while just like everyone else.

Hindsight Is Basically Unsweetened Chocolate

My view for three hours this morning.

My view for three hours this morning.

In what can only be labeled an attempt to undermine my sanity, hubby arranged for me to take his FJ Cruiser in today for new tires and an alignment. I am a fairly independent woman, but I loathe, despise, and deeply hate being forced to deal with anything even remotely car-related. I can do the minimum things (pump gas, wash and wax the car, change out a headlight, check tire pressure, and even change a tire) but I hate taking vehicles in for service. Most times when I take the car in, I am treated like what I am…a blonde female. Now, it’s true. I know next to nothing about the inner workings of an automobile, but I know many men who are floating in that same boat along with me…including my spouse. Oddly enough, though, when Steve takes the car in no one talks to him as if he’s low number on intelligence totem pole. After years of being talked  down to as if I’m barely equipped with an IQ of 70, I decided that one of the benefits of marriage for a woman is having a husband around to deal with things like cars, sprinkler systems, and spiders the size of my palm. So, I don’t do car visits. Until today, apparently.

Still, I determined to make the most of my opportunity. I packed some amusements for myself and purchased a grande vanilla non-fat latte from Starbucks to help me wile away the time. While I was sitting in the waiting room for a seemingly interminable three hours, I got to enjoy the vapid dialogue of daytime television hosts and the woman seated next to me who thought her personal phone conversation was important enough to share. I tried to block her out by putting my new Kindle Paperwhite to use. I pulled up the book on dyslexia that was recommended to me back in November when we learned about Luke’s learning difference. The dang book is 400 pages long and filled with all kinds of discussion about brain scans and reading remediation tactics. Up until now, I’d only been able to whittle my way through 17% of it because it’s hardly what you’d consider “light reading.” Today, I rationalized, was my chance to sit, focus, and plow through a couple chapters about how our son’s very interesting brain works.

The deeper I delved into the book, the more I saw our son in the pages. If I had ever held any doubt about Luke’s diagnosis, reading this book would have immediately eradicated them. No need for expensive and time consuming psychoeducational testing or brain scans. The list of potential clues to watch for read like a movie of my experience parenting Luke as he began to read: difficulty with rhyming, inability to say the entire alphabet, trouble recognizing letters, inability to read sight words, poor spelling, abysmal handwriting, and occasional word/letter reversals, all combined with an above average verbal ability and excellent listening comprehension. Despite all these clues, we were repeatedly assured that his skills were increasing, his reading level was improving. So, we pushed everything to the back of our minds. What I understand now is that too few people, including elementary school professionals, understand the signs to look for. Inundated with requests from over-protective, over-involved parents, teachers often assume that the parents are over-reacting and that the child is advancing within “normal” parameters. I get this. Still, I couldn’t help but think as I read today that if I had been armed with this book three years ago when Luke began reading instruction, I would have been more insistent with my concerns.

Experts in the field say that early intervention is key with children with dyslexia. The sooner the learning difference is identified, the more quickly the student can begin learning in a way that best suits their right-brained approach. The longer it takes to determine the problem, the further along a child is when she begins the catch up process. Unfortunately, too few people understand dyslexia, its components, its remediation. Too few people believe it’s a legitimate, real, and prevalent concern. (An estimated 20% of students would benefit from a different method of learning to read. Chew on that for a minute.) I had my suspicions about Luke. I made a conscious choice to let others’ reassurances placate me. I chose not to worry. I ignored my intuition. I now feel confident that we’re doing the right things for Luke. I now completely believe that he will become a competent reader. He may never be good at telling his left from his right, but he will read.

Timing is such a crucial thing in life, which is why the hindsight phrase is so resoundingly true. In hindsight, if I’d had Overcoming Dyslexia in my hands three years ago, we’d be three years ahead of where we are now with Luke and his struggles. But that, as they say, is water under the bridge. I need simply to be grateful that we uncovered Luke’s dyslexia when he was in 3rd grade and not 7th. If you look at it that way, I’m 4 years ahead of the curve, which is quite helpful. I guess hindsight is all in how you look at it. I mean, I never wanted to spend three hours in the service department at the dealership today to obtain my husband’s discounted tires, but if I hadn’t been stuck there with nothing but my Kindle to amuse me I would still be only 17% of the way through the book I started in late November. Hindsight is a bit like unsweetened chocolate. It’s not as awesome as milk or semisweet, but it’s still chocolate and that has to count for something.