Dyslexia. For most of my life, the word conjured in me a sense of doom. Like so many people, I imagined a dyslexic person would be sentenced to a life without reading, a life without higher education, a life being thought of as a dummy. I never imagined dyslexia would touch my life. And then I tried to teach my sons to read.
Joe struggled with simple character reversals, consistently transposing b and d and 2 and 5. He couldn’t say his alphabet, always leaving letters out, skipping from p to v. His first grade teacher gave him a failing grade in reading during the first trimester that year, and I could not figure out how a child in first grade who was learning to read could be failing at it. We later discovered Joe had ADHD and mild dyslexia. Luke’s reading issues were worse than Joe’s. Luke not only transposed letters but couldn’t seem to stop confusing entire words, like what and that and the and who. When we tried to get him to read to us, he had every excuse imaginable. When he hit third grade, he began falling behind and we had him tested. Luke was diagnosed with moderate to severe dyslexia. We were told he needed to be taught to read in an entirely different way from his classmates and would either need to enter an intensive reading program for three months, which meant taking him out of school for that period, or be moved to a remedial school. I was crushed.
At that point, we made the decision to put both boys into a private school for children with learning disabilities. There they received not only reading instruction delivered in a way that allowed them to catch up to their peers, but also individualized math lessons and time with occupational and speech therapists. They began to blossom. We all began to see their strengths more than their struggles and started feeling hopeful about their prospects despite their dyslexia.
People often speak of their heroes: brave soldiers, firefighters, police officers, and selfless volunteers. I have never believed heroism belonged solely to people who save other’s lives or make immense sacrifices. I choose to find heroism in those who face adversity and rise above. My sons are my heroes. They started out behind their peers and have been working to catch up since birth. They’ve never given up. They’ve never accepted less for themselves. They’ve figured out how to embrace their strengths while working to overcome their struggles. It’s been a gift watching them develop and grow and push beyond the limitations inherent in the way their brains are set up. They inspire me.
Luke reads every day in his free time. He is not a fast reader, but he soldiers on. He challenges himself. He never quits. In seventh grade, he got 100 pages into self-chosen Mein Kampf before deciding he might not be mature enough for it yet. Last year in eighth grade Honors literature, he read White Fang, 1984, Watership Down, Of Mice and Men, as well as Jon Krakauer’s Into the Wild and Into Thin Air, and in his spare time he also read the 650-page biography of Steve Jobs and The Man in the High Castle. This summer he chose to read Homer’s The Iliad and then followed it with The Odyssey. On his Christmas list is a rare book about World War II written in 1948 by a Jewish soldier in the British army. His teacher this year assigned Bless Me, Ultima and then said she was hoping they could compare that to Like Water for Chocolate, which she hasn’t yet assigned but he has finished reading anyway. I have no idea how this is the same kid who fought us when we asked him to read Don’t Let the Pigeon Drive the Bus.
A few weeks ago Luke said something I have been turning over in my mind since. He said, “Dyslexia is not a reason not to read. It is a reason to read.” And that sums up Luke. He’s Han Solo who says, “Never tell me the odds” or John Locke from television’s Lost when he exclaims, “Don’t tell me what I can’t do.” I’ve thought a lot about his attitude, about taking what is difficult and turning it to your advantage, about being told who you are and proving them all wrong. As a child, it’s easy to take what you are told about yourself and believe it. I know I did. But I think it’s time I start looking at life through Luke-colored lenses. Maybe all the things I was told I can’t do should become all the things I have to do. By my side will be the child who has shown me what it means to believe in yourself, naysayers be damned.