Lost And Found

Joe Cool

My eleven year old son forgets everything. His short-term memory ranges somewhere between “not great” and “abysmal.” This is mainly a symptom of his ADHD, the attention-deficit portion. The kid has returned home wearing just one shoe. No joke. One shoe. When asked where the other shoe was, he had no idea. Not one clue. He wasn’t even sure if he had left the house wearing two shoes. This makes life around our house very interesting. It’s a perpetual treasure hunt without the benefit of a map.

A couple years ago, Joe wore braces on his very wonky front teeth. When the braces finally came off his newly straightened teeth, they handed us a retainer for him to wear every night while he slept. I laughed out loud. Were they kidding me? The idea that he would remember to put the retainer in his mouth every night and then remember to take it out in the morning and store it in a small plastic case was optimistic bordering on insane. Still, we took the small piece of plastic and its silver case and left the orthodontist’s office. I shook my head all the way home.

Due to the ever-evolving state of Joe’s teeth, Joe’s retainer has had to evolve too. So, for the past two years, we have watched them whittle down his original, full upper-palate retainer until it fits just Joe’s four upper front teeth. This retainer, in addition to being completely clear and nearly invisible to begin with, is now microscopic. Consequently, we are in a continual game of hide-and-seek with it. We’ve had some fun, scavenger hunt nights in our house as we rooted around trying to find Joe’s retainer with our only clue to its whereabouts residing in Joe’s sketchy short-term memory. I’ve found his retainer on the floor under the boys’ bunk bed, on our bathroom counter, on a coffee table tray in the family room, in the couch cushions, on the dining room table, on the kitchen counter under a loaf of bread, and in a cup holder in my car. How we have managed to keep it around this long is nothing short of a Jesus-in-the-grilled-cheese-sandwich miracle.

Tonight, as bed time approached, we went through the familiar routine. We told him to brush his teeth and put his retainer in. When he bellowed downstairs that he didn’t know where it was, we told him to find it. He looked around upstairs and then came down to the main floor to rifle around. Wanting to get him to sleep sooner, we paused Breaking Bad on the DVR and joined the search party. We checked all the places we’ve previously found it. No retainer. Had he finally lost it for good? I asked him to go look upstairs one more time, and we went back to watching our show. A few minutes later, he yelled down again. We missed what he’d said.

“Did you find it?” I shouted upstairs.

“Yeah. Got it,” he replied.

“Where was it?” I shouted, always cataloging places it has traveled. Who knows? I might find it there again someday.

“It was in my mouth the whole day,” he said.

Hubby and I looked at each other. Oddly enough, we weren’t that shocked. That would, in Joe’s case, make as much sense as anything else. A few seconds later, he shouted down to us again.

“It wasn’t in my mouth. Just kidding. But, I did find it and it’s in my mouth now,” he told us, and he went back to playing video games.

Steve and I had a good laugh. It was the first time Joe had ever fooled us. He’d delivered that fallacious statement, so perfectly well-timed and with just the right amount of inflection, and we were none the wiser. Turns out the kid has a pretty dry sense of humor, sneaky and under-the-radar like a Jedi. Even as our son continues to lose everything else, we’re happy to see he’s finding his own sense of humor about it.

 

 

Our Son, The Science Experiment

Me and my science experiment

Our son, Joe, was just 8 years old when we took him to Children’s Hospital in Denver where several psychological professionals interviewed and observed him and told us they were certain he had moderate ADHD. He wasn’t the worst case they’d seen, but they felt he would improve the most quickly with medication. We discussed the benefits and side effects associated with this type of treatment with the doctors and decided to go ahead and start him on a low dose of Concerta, an extended release form of the drug Ritalin. We had hoped never to have to put our child on medication and had investigated other possible explanations for our son’s poor grades, non-existent attention span, nervous gestures, and total lack of impulse control before finally being able to admit that perhaps he truly did have attention deficit hyperactivity disorder.

One of the side effects the doctors discussed with us at length was the possibility of slowed growth due to the medication. They assured us that children on the medication do continue to grow but at a much slower rate. Born prematurely, Joe was on the small side to begin with. One suggestion the doctors had was to take him off the medication during breaks from school, especially long ones like summer vacation, to allow his body a bit of unrestricted time for growth. Up until now, we had elected not to do that because we were focused on using the medication to get him caught up in school and with his self-esteem issues. But, after seeing him with his classmates at Field Day this year, we finally decided it might help to take him off the Concerta for the summer. You see, Joe is the oldest boy in his class by nearly a year and yet he’s still the shortest. There’s nothing wrong with being short, but if we can help him catch up it seems like we should.

So, a week ago we took away Joe’s medication and asked him to try going two days without it. He was adamantly against the idea, but we persisted. We managed to turn two days off into four and then eventually into an entire week. On the plus side, we’ve seen a definite improvement in his eating and sleeping habits, an indication that he might just grow if we keep this up. But, I’m not going to lie. These past seven days have been tough. Our boys, who get along 95% of the time when Joe is on his medication, fought quite a bit more this week. I spent far more time than usual trying to solve disputes and suppress whining. Joe’s been more argumentative, impulsive, and distracted. He’s been on the medication for nearly three years now, so I had almost forgotten this side of him. If there’s been a silver lining to this little experiment, it’s that if we’d harbored any concerns about whether he truly had ADHD or whether the medication was honestly working, those concerns are gone.

Today Joe announced that he was going to take his medication again starting tomorrow. He told us that he’s tired of feeling out of control. I understand that. I do. But, I feel that Steve, Luke, and I are partly responsible for his feeling that way because we’re not used to his behavior off the medication and we’re acting differently toward him, expecting things of him that we expect from medicated Joe. That is simply not fair. Before he went to bed, we had a little family discussion. We asked Joe to forgive us for our impatience because as much as this is a period of readjustment for him it is also one for us. We promised we’d lower our expectations of him a bit if he would be willing to work a little harder to focus and try to meet us midway. Luke, exhausted from fending off Joe’s poking and prodding and teasing and belittling, told us he simply wants the “old Joe” back. Luke definitely bears the brunt of Joe’s ADHD symptoms, so we’re definitely taking that into consideration.

After the boys went to sleep, hubby and I decided that we’re going to give Joe’s medication-free trial run one more week…one week when we resolutely try to understand where he’s at and not where we expect him to be. Our biggest fear right now is our not being able to control our expectations and then making Joe feel bad about his behavior when it’s really not his fault. So, we’re going to try to rein ourselves in and let him be. If at the end of the next week we feel this time off is going to do more harm to him emotionally than good to him physically we’ll put him back on daily doses. I hate feeling like he’s a science experiment, but right now he kind of is. I would love to see him experience a growth spurt, but not at the expense of his self-confidence and self-esteem. Some parents, I’m sure, put their child on medication to save their sanity. We put Joe on it to save his. If taking him off for a couple weeks causes him to feel bad about himself again, the experiment ends. I’d much rather have a shorter-than-average happy kid than miserable child of average height. Science experiment be damned.

 

The World’s Best Kindergarten Teacher

Luke with Miss Jackie at Unique Prints. He had to try to stay inside the barrel why she tried to toss him out. He loved that game. The look on his face is pure joy. Money well spent.

My boys were fortunate enough to have the world’s best kindergarten teacher. She literally changed their lives with her insights into them and their issues and with her genuine love for them and their uniqueness. Sandra was the first one to suggest to me that there might be an issue that was causing our oldest son to be years behind his classmates in terms of fine and gross motor skills. It was Sandra that pointed us to Unique Prints, a therapy gym specializing in children with Sensory Processing Disorder (SPD). Sandra gently helped us to see what we had not understood or were not willing to acknowledge. Our boys needed extra help, and there was no shame in that.

As I look back now over the last five years, it’s amazing the progress I’ve seen in my boys. They still battle some sensory issues, but they’ve come such a long way. The time I spent driving them an hour round trip to Unique Prints two or three times a week so they could “play” in the occupational therapy gym while I sat in the waiting room was well worth it. Because of Joe’s original diagnosis with SPD, we were able to diagnose more quickly that he had ADHD as well. Therapy is expensive, but we were fortunate to have great insurance that paid for most of what our boys needed. There are plenty of people out there who want to do the right thing to help their children but don’t have the means we do to get them the help they need.

When our youngest was in Sandra’s kindergarten class, he had a classmate with whom he continually knocked heads. I often worried about Luke in these tussles because Luke is a small kid and his classmate was on the other end of the size spectrum. I was concerned that Luke was being bullied because Luke told me he was sometimes afraid of the other boy. I went to talk to Sandra about my concerns, and she pulled me aside and let me know that the other child involved had issues of his own. She never disclosed exactly what was going on with him, but she told me that his family struggled with his issues the same way we were struggling with Joe and Luke’s issues. She also told me that they were good parents who were trying to do the best for their child that they could. Her honesty about the situation helped me to understand. I felt bad that I had looked at that other child the way I’m sure other parents had looked at my children with their issues, with no compassion or desire to understand but with judgment. And, in the end, when the other boy left the school to get more specialized treatment, I was truly sad to see him go.

Today, Sandra posted a link to this video for a family looking for assistance for their not one, but two, sons with autism. The family would love to get a therapy dog to help their boys. But, therapy dogs cost around $6k, and that’s a lot of pocket change for most families. I watched the video because Sandra had recommended it, and Sandra is good people. I immediately recognized that the older son in the video was Luke’s old classmate. I watched the video and had a good cry. It’s amazing how life works sometimes, how it puts you in touch with people and situations that, if you’re lucky enough to be paying attention, will teach you the lessons you need to learn.

Life is hard. We all have our challenges and limitations. We all are on a journey that no one else can take for us. I can’t expect other people to be patient with my sons’ issues if I’m not willing to be patient and understanding about the struggles other families are having. And, as hard as it has been at times to parent my unique, sensory-challenged boys, I’m so incredibly blessed to have gotten off as easily as I have. Sometimes it takes a special reminder to bring you back to gratitude and peace with the way things are. Today I’m grateful for such a reminder courtesy of the world’s best kindergarten teacher ever….the one who even manages to teach adults a thing or two.

So We Beat On, Boats Against The Current

Ummm…yeah. No.

I’ve noticed lately that because we’ve had such warm, pleasant weather, spring fever has hit my boys early and relentlessly. They are already mentally finished with school, and they aren’t actually finished until May 25th. I’ve been pestering, wheedling, bribing, and cajoling to get them to focus on their studies.

Today, I made the boys sit down and get to their homework as soon as we walked in the door from school. Joe had 30 sentences to write for spelling. He did not want any help from me. Before I knew it, he was over at the counter stapling a couple loose-leaf pages together. I could tell from across the counter that his work was nearly illegible.

“Let me see your paper,” I requested.

“No, Mom. It’s done. I’m going to put it in my folder,” Joe replied.

“No, you’re not. Give it to me.” He looked at me, fear in his eyes. “NOW,” I bossed.

He acquiesced. The second the paper hit my hand I knew what I had to do. I was not happy about it.

“Seriously, Joe? Do you really think this is ready to hand in?”

It was a rhetorical question. His handwriting, usually difficult to read, was indecipherable. It might as well have been Sanskrit. While he had managed to capitalize the first word in every sentence, some sentences lacked final punctuation. Many words were incomplete. Most of the sentences did not have the spelling word underlined. Some of the spelling words were actually misspelled.

“No way,” I told him. “This has to be redone. This is not even close to acceptable work.”

“The WHOLE thing?” he gasped.

“Yes. You need to rewrite all thirty sentences. Neatly.”

“But, I’ll never get outside to play,” he cried.

“Yes, you will. It’s just going to take longer because you didn’t take your time the first time through. It’s a bummer, I know.”

Although I could tell he was livid (and sad too), he was careful to select new paper without any sign of tantrum, knowing that would bring down the Wrath of Mama Bear. No one wants to incur that. He sat focused for a while and his second paper was much neater, although still not perfect given his “sloppy Joe” penmanship.

Joe struggles with his schoolwork, not because he’s unintelligent but because his ADHD makes it difficult for him. The great weather and the approaching end of the school year are merely additional distractions he must face. I feel badly for him. It is much harder for him than it is for his classmates, even with the special concessions the school makes for him (like allowing him to print rather than use cursive for his written work). I truly loathe making him redo his work, but if I don’t make him do this now he will never learn. So, nearly every day he has homework we go through this same routine. He does it. I make him redo it. It’s like one long Groundhog Day. And this would frustrate the living daylights out of me if I hadn’t seen him catch on in other instances. It takes four times longer than it would for another child, but he eventually gets it. I know there’s hope.

I used to wonder whether the diagnosis of ADHD with Joe was unnecessary, whether we’d rushed to judgment. I’ve since realized that this is not a phony disorder with Joe. If you ask him, he can tell you that every sentence should start with a capital letter and end with a period. He knows it. He is simply unable to translate this knowledge because his brain thinks differently and he processes things unlike other people. Joe and I have a tacit understanding: I will keep harping on him until the basics become second nature, and he will keep giving me reasons to harp so that I know beyond the shadow of a doubt that he truly struggles because of ADHD and not because he’s lazy, stupid, or unmotivated. He doesn’t want to redo that paper any more than I want to make him redo it. We’re where we are because it’s where we are. Someday we will push beyond this, and there will be another obstacle. But, I have no doubt that we will overcome it. That is what we do, Joe and I.

Queen of Justification

Luckiest Boy EverJoe has never been great with surprises. From the days when he was very young, changes in his routine or in what he expected have puzzled and upset him. I remember once when he was three I was driving him to preschool and, preoccupied, I accidentally altered our route. Immediately he recognized my error and started worrying.

“This is the wrong way!” he shouted from the back seat.

“Oops. You’re right. It’s okay. We’ll just go a different way this morning, Joe.”

“I’m going to be late. I’m going to get in trouble. It’s not my fault.”

“It’s okay, sweetie. We’ll still get there. We’re just going a different route. There are dozens of ways to get to your school. We’ll still end up there.”

“But, I’ll be late.”

“It’s okay,” I reassured him. “I made a mistake. It happens. When you get to school you can tell your teacher it’s your mom’s fault that you’re late.”

Sure enough, that’s exactly what my charming and exceedingly conscientious three year old did. He walked into class a few minutes late and announced to everyone that I had made a mistake and gotten on the highway and that’s why he was late. Eeesh.

Joe had a rough 1st grade year so when his summer birthday rolled around we thought it might be fun to invite all his classmates for a surprise party. I guess we weren’t thinking when we planned the “surprise” part of that equation. Joe arrived at his party and when his friends shouted Happy Birthday, instead of being excited to see them, he ran into the corner of the yard and hid behind some bushes. He was so overwhelmed by the unexpected that he shut down. It took about ten minutes to convince him to rejoin his party guests. I still wonder if he suffers from post-traumatic stress disorder as a result of that surprise.

We’ve spent years trying to convince Joe that change is okay and that, sometimes, it is not only necessary but positive. We routinely put him in situations where we throw the unexpected at him, both positive and negative, and guide him in dealing with it.

When the iPad2 came out, Joe mentioned that he would like one. Ha! Wouldn’t we all? We told him to forget it. We mentioned the Kindle Fire, and that is what he expected to open on Christmas morning. Instead, Santa had a little surprise up his sleeve. Santa had a $250 Visa gift card burning a hole in his pocket, so Santa splurged on the iPad2 after all. I watched Joe with great anticipation as he opened his gift. I’m always waiting for him to freak out, so seeing him happily, calmly surprised like he was on Christmas morning makes me proud.

Experts advise parents of ADHD children to routinize their lives as much as possible. I see the validity in that. Joe does need structure and routine to keep him on track at school and with chores around the house. But, as much as those things help him function more like the rest of us, the truth is that life is messy. Routines get interrupted. Schedules get pushed forward and back without warning. Because it’s difficult for Joe to deal with change, it’s even more important that we give him opportunities to do just that.

Okay. So giving Joe an iPad2 instead of a Kindle Fire wasn’t exactly a stressful surprise or unpleasant change. But, I need justification for purchasing that expensive, electronic gadget that my son really wanted. So, that’s my story, and I’m sticking to it. 😉